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This is the leading charity for people in the UK with a visible difference: a mark, scar or condition that makes them look different. They provide advice, support and psychosocial services to children, young people and adults. They offer face-to-face and telephone counselling sessions, email advice and self-help guides. They also run small group workshops and advise on skin camouflage.
A community sharing experiences and knowledge to make life with acne easier. Includes blogs, forums, the latest news and research. People can ask experts for guidance and register their interest for an online patient support programme.
SymTrac Hives app Supports people to track symptoms (using the urticaria activity score (UAS) and its weekly sum (UAS7 score), uploaded photos, and notes) and their impact on quality of life (using the DLQI). It encourages communication of this information to healthcare professionals.
Includes a free helpline providing information, support and reassurance to people struggling to cope with eczema. They also run support groups in various locations, including London.
An online community that promotes use of the ‘combined approach’ – topical treatments and use of habit reversal to reduce scratching. Randomised controlled trials suggest that habit reversal plus topical treatments are superior to topicals alone in atopic eczema.
Online information about the condition and treatments, helpline for further advice, e‑newsletter and patient-focused journal. They hold online discussion forums, raise awareness, fundraise, promote research, and represent members at local and national levels.
Regular updates and newsletter, open days to meet others with the condition, social media contact (Facebook and Twitter), campaigning and raising awareness.
